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3 Peaks Challenge for Reverse Rett
Our small but mighty Hobbs House Bakery team will be taking on the Three Peaks Challenge this June to raise money for Reverse Rett — a wonderful charity that means a great deal to all of us at Hobbs.
The lovely Megan from our People Team has a daughter, Alba, who has Rett Syndrome — a rare, random genetic condition that affects around 1 in 10,000 girls. Alba is the inspiration behind our decision to take on this gruelling 24-hour challenge, which will see us climb the three highest peaks in the UK.
The Team Taking on the Challenge:
- Anna, Marketing
- Jen, People Team
- Nicky, People Team
- Jamie, Nicky's Husband
- Carla, Retail
- Lucy, Chipping Sodbury Shop
- Tom, Tetbury Shop
- John, Baker
- Bex, Product Development
- Sophie, Compliance
- Jane, Cookery School
Click here to support us in raising money for this truly deserving cause.
Alba's Story
Alba is 5 and has Rett Syndrome, meaning she struggles on a daily basis with most things we take for granted. She cannot stand or walk independently, cannot talk verbally, has minimal use of her hands, and suffers with seizures, body tremors and irregular breathing patterns. She needs support from the moment she wakes up in the morning to the moment she falls asleep in the evening and takes medication twice a day. She has a range of equipment to assist her - a wheelchair, walking frame and specialist shoes to help her get about, an Eyegaze device to enable her to speak, and supportive seating for mealtimes.
Alba is trapped in a body that doesn't work properly. She is a funny, clever and cheeky little girl. She understands the world around her and understands anything spoken to her. She loves animals, Frozen, swimming and pizza! She deserves to live a life like any other 5 year old. She shouldn't have to spend so much time in multiple therapies, or at the hospital having x rays and blood tests, or missing days of school due to seizures and breath holding episodes. Rett Syndrome is currently incurable and on the whole untreatable. To watch your child deteriorate before your eyes is a heartbreak we wouldn't wish upon our worst enemy. We used to have good days and bad days, but now every day has a mix of good and bad.
But there is hope. Aside from her giggles, smile and sassy ways, the thing that pushes us through most days is the possibility of a treatment or cure for Rett Syndrome. Reverse Rett are currently supporting Gene Therapy trials within two separate companies. The results so far are more than we could ever imagine, and it's vital that we keep pushing these trials forwards to bring Gene Therapy to Alba and other girls and young women suffering with Rett Syndrome. This treatment would not only be life-lengthening, but life changing. Our dreams of watching Alba skip through the park, write her name in a birthday card, or simply call out 'Mumy! Daddy!' may one day come true. Reverse Rett also solely fund a specialist clinic in London, which is crucial to keep our girls as healthy as possible until Gene Therapy is hopefully available. They offer support that the NHS cannot, and without them many of our girls wouldn't still be here.
By supporting Reverse Rett, you're offering a lifeline, and hope, to so many families like ours. Click here to follow the team's training or make a donation.
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